It's that time of the week again, where I bring you yet another update on the quirky happenings of my SRP!
Continue reading
As you may guess from the title, this past week has been centered around settling into more of a routine and really getting started on the bulk of the research I'm supposed to do. My first two weeks were more of an introductory, "can you get used to everything here" sort of period, but now, I'm slowly starting to work more and more on the primary goal of this experience: to research and present my findings. I just received a finalized schedule yesterday, which will help, so I won't have to keep running back to my on-site mentor when I'm not sure where to go. I've been doing more and more reading of articles and books, and I've begun working out consent forms that I'll be distributing to parents of patients before I begin with my case studies. All in all, it really feels like I'm moving on with my research and getting on the right track, which I find quite exciting!
But of course, not everything is serious work, and I couldn't leave a blog entry without at least one recount of sessions during the week. There's one in particular that really had an impact on me, and that I'd really love to share. It was one of the individual sessions I'd observe and take part in every Tuesday, where a girl my age-- let's call her Agent P-- would come in for her NMT appointment. Unlike many of the patients at the clinic, Agent P doesn't have autism; instead, she suffers from a rare mitochondrial disease (which I don't know the official name for yet, unfortunately), which distorts the energy production process in her body. This greatly impedes her movement and speech developments, giving her jerky and haphazard movements at times, and making it difficult for her to speak, let alone in complete sentences. Now, in the past few weeks, I've already come to realize how hard a worker Agent P is. She's always laughing and smiling, never giving up or being stubborn. She's always been like this, at least in NMT, according to her therapist, and she's an absolutely joy to be with.
In all fields of therapy, therapists will set goals for their patients to fulfill over a certain period of time, oftentimes a month or so, as well as more long-term goals. One of Agent P's primary goals was to fluidly and consistently formulate and speak sentences with five or more syllables without prompting. As such, it was common for her and her therapist to spend a great part of the session focused on communication, where Agent P would try speaking her mind, her therapist would write whatever words she said, and together, they'd try to come up with a complete sentence.
This past Tuesday, however, Agent P wasn't just speaking for the sake of her NMT and whatnot; she was flat-out holding full conversations and getting all her thoughts out there. The moment her therapist and I came out to get her from the waiting room, she was talking, telling us all sorts of things about her "tooth doctor" and her new green toothbrush and her eye doctor who'd "get her glasses." Even while doing some movement exercises, she continued talking about how the next time she'd go to the tooth doctor would be in August.
By the end of the session, she had come up with a 14-syllable sentence on her own, and only made one small mistake with the placement of the word "is." While I was surprised, I figured she must have just been talkative that day, and I just hadn't seen that side of her before today. Boy, was I wrong. As soon as we left the waiting room and returned to her office, her therapist started gushing about how proud she was of Agent P, how that had rarely, if ever, happened, and so on. And I couldn't help but share the sentiments. I've grown attached to a lot of these patients in the past few weeks, Agent P in particular, and seeing her work so hard, without any complaint, to achieve things like long sentences for, apparently, the first time, made me feel like a proud guardian or something.
All the patients here, no matter their personality, diagnosis, family life, or whatever, try so hard and achieve so much, it's baffling, but no doubt amazing.
What I've Learned
Really, I'm surprised I've managed to keep this segment up so far. I feel like my points are getting less and less serious as we go on... though, is that really something to complain about?
Anyway, without further ado, here are five things I've learned...
1. NMTSA's front door's passcode
2. Three of the music therapy interventions/practices: MACT (Musical Attention Control Training), MIT (Melodic Intonation Therapy), and APT (Auditory Perception Training)
3. If I ever decide to go into music therapy in the future, I really need to learn how to play the guitar
4. Don't let the autism fool you-- kids will be kids, and kids are sneaky.
5. If you accidentally throw a bouncy ball at your on-site mentor's head, and it's during an NMT session with a patient, they probably won't chew you out for it. (Probably)